Mary Elizabeth Switzer (1900–1971) was an administrator who became head of the Social and Rehabilitation Service in 1967. She influenced the evolution and expansion of federally funded services to those in need and improved services to people with disabilities.
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Switzer, Mary Elizabeth
Larraine M. Edwards
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Intellectual Disabilities
Leah Igdalsky
Social workers working with individuals with intellectual disabilities and their families require an understanding of the disabilities themselves as well as the larger context of disability in society. Individuals with disabilities face particular risks for poverty and poor healthcare, and it is essential for social workers to understand the complex web of social services available. Furthermore, social workers often work not only with the person with a disability but also with their caregiving families.
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Dyslexia
Linda Siegel
Dyslexia, or a reading disability, occurs when an individual has great difficulty at the level of word reading and decoding. Comprehension of text, writing, and spelling are also affected. The diagnosis of dyslexia involves the use of reading tests, but the continuum of reading performance means that any cutoff point is arbitrary. The IQ score does not play a role in the diagnosis of dyslexia. Dyslexia is a language-based learning disability. The cognitive difficulties of dyslexics include problems with recognizing and manipulating the basic sounds in a language, language memory, and learning the sounds of letters. Dyslexia is a neurological condition with a genetic basis. There are abnormalities in the brains of dyslexic individuals. There are also differences in the electrophysiological and structural characteristics of the brains of dyslexics. Hope for dyslexia involves early detection and intervention and evidence-based instruction.
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Effective Practices for Helping Students Transition to Work
Michael Shevlin, John Kubiak, Mary-Ann O'Donovan, Marie Devitt, Barbara Ringwood, Des Aston, and Conor McGuckin
People with disabilities have been among the most marginalized groups within society, with consequent limitations imposed on their access to many goods within society, including education, employment, and economic independence. Some progress is evident in the establishment of more inclusive learning environments, yet it is also clear that upon leaving compulsory education or further/higher education, young people with disabilities encounter significant barriers to accessing meaningful employment. Facilitating transitions to employment for people with disabilities should be informed by ambition and a belief in the capacity of these individuals to make a meaningful contribution to society and achieve a level of economic independence. The issues that are pertinent to young people who have a special educational need or a disability and an aspiration to transition to further/higher education require attention. Research and applied practice has demonstrated the utility of an innovative educational and work readiness program for people with an intellectual disability. Such work highlights the facilitating factors that may encourage a more ambitious reimagining of what may be possible for individuals who have been marginalized.
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Bringing a Humanistic Approach to Special Education Curriculum
Michelle Parker-Katz and Joseph Passi
Special education curriculum is often viewed as an effort to provide ways for students with disabilities to meet specific academic and socio-/behavioral goals and is also heavily influenced by compliance with multiple legislative policies. Critical paths forward are needed to reshape a special education curriculum by using a humanizing approach in which students’ lived experiences and relatedness to self and others is at the core of study. Intentional study of how students and their families draw upon, develop, and help shape local supports and services that are provided through schools, along with community and governmental agencies and organizations, would become a major part of the new curricular narrative.
However, the field of special education has been in large part derived from an epistemology rooted in science, positivism, and the medical model. The dominance of these coalescing epistemologies in educational systems has produced a myriad of structures and processes that implicitly dictate the ways special educators instruct, gather data, and practice. Core among those is a view that disability is synonymous with deficit and abnormality. What emerges is an entrenched and often implicit view that the person with disabilities must be fixed. In adopting a humanistic approach in which we value relationships, the funds of knowledge families have helped develop in their children and the identities individuals shape, and the linkages of persons with multiple community networks, the groundwork could be laid for a new curricular narrative to form. In so doing, the field could get closer to the grounding principle of helping all students with disabilities to thrive. For it is in communities that people can thrive and choose to participate in numerous life opportunities. In such a way curriculum is integral to lived experience, to the fullness and richness of lived experiences—lived experiences that include the study of academic subject matter along with the development of social and emotional learning.
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Dyslexia: Conceptualization, Assessment, and Intervention
Julian G. Elliott
Scholars, teachers, clinicians, and the general public have puzzled over the nature and consequences of severe reading (decoding) problems for more than a century. With the advances of genetics, neuroscience, and psychology, we know much about the underlying nature of reading disability. However, we still have much to learn, and fierce debate continues about whether there is a subgroup of poor readers who can, or should, be called dyslexic. This issue has become highly contentious, as gaining the label can bring significant benefits in terms of resourcing, various forms of test and classroom accommodation, and more positive and understanding responses from others.
Many clinicians argue that special cognitive tests are needed to identify and diagnose those with dyslexia. These may take the form of general tests of IQ, or measures of more specific cognitive or executive functioning. Despite their popularity, the evidence for the utility of such measures is low, and many of the processes examined are often problematic for all poor readers, not merely the subgroup deemed to have dyslexia.
A further difficulty concerns intervention. There is no strong scientific support for the notion that intervention programs designed to improve underlying cognitive processes (e.g., memory processes) can successfully improve the reading accuracy of those who struggle to acquire literacy. Similarly, interventions geared to improve visual or motor functioning have not proven successful, despite often vociferous support from adherents. The only approach that has strong scientific support takes the form of an educational program that utilizes systematic, structured phonics teaching as part of a broader literacy curriculum. This finding applies equally to those who have been diagnosed as dyslexic and those poor readers who haven’t. For this reason, it is unclear how a dyslexia diagnosis helps to inform the nature of subsequent intervention.
In establishing effective forms of intervention that can cater for any child who struggles with their reading, it would appear most efficacious to utilize what is known as a “response to intervention” approach. This requires early identification of, and intervention with, all those who are making limited progress. Intervention should only utilize those approaches that have strong scientific support. The nature and extent of additional educational support should be determined on the basis of the progress that is made when additional help is given. If insufficient progress has resulted, it may well be necessary to increase and intensify the intervention. Such an approach helps to ensure that all struggling children are helped at an early stage, and no one is missed because of an absence of parental advocacy or a lack of family resource that can cover the cost of diagnostic assessment.
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Autism Spectrum Disorder
Sandy Magaña and Lauren Bishop
Autism spectrum disorder is a heritable, developmental disability that is characterized by challenges with social communication and the presence of restrictive and/or repetitive patterns of behavior. Autism spectrum disorder affects development and quality of life from very early development through old age. Social workers play a number of different roles in supporting and advocating for individuals on the autism spectrum and their families. It is important that social workers understand the etiology, diagnosis and treatment of autism spectrum disorder, how it manifests throughout the lifespan, and challenges faced by families affected by ASD.
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Effective Practices for Teaching Writing to Students with Disabilities in the United States
April Camping and Steve Graham
Writing is especially challenging for students with disabilities, as 19 out of every 20 of these students experience difficulty learning to write. In order to maximize writing growth, effective instructional practices need to be applied in the general education classroom where many students with special needs are educated. This should minimize special education referrals and maximize the progress of these students as writers. Evidence-based writing practices for the general education classroom include ensuring that students write frequently for varying purposes; creating a pleasant and motivating writing environment; supporting students as they compose; teaching critical skills, processes, and knowledge; and using 21st-century writing tools.
It is also important to be sure that practices specifically effective for enhancing the writing growth of students with special needs are applied in both general and special education settings (where some students with disabilities may receive part or all of their writing instruction). This includes methods for preventing writing disabilities, tailoring instruction to meet individual student needs, addressing roadblocks that can impede writing growth, and using specialized writing technology that allows these students to circumvent one or more of their writing challenges.
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Inequality
Michael Blim
Inequality in all its forms is common to human societies, and thus its understanding is part of the central mission of anthropology. Social structural elements such as race, class, gender, status, and caste have a decisive influence on human well-being and have been a persistent focus of inquiry over the course of more than a century of anthropological investigations. It is also fair to say that anthropologists over time have adopted as core values equal protection and equal opportunity for all peoples. These principles have been applied by extension most recently to sexual minorities, stateless refugees, and migrants.
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Politicians with Disabilities: Challenges and Choices
Sally Friedman and Richard K. Scotch
Persons with disabilities make up a large and significant segment of the American public; however, Americans with disabilities have rarely been considered an important political constituency or received public (or scholarly) attention in terms of their representation among political candidates or office holders. To the extent that people with disabilities have been addressed in American political discourse, they have been associated with the receipt of public benefits and services instead of being thought of as people with the potential to actively participate. Having a physical or mental impairment has typically carried with it a considerable degree of social stigma, and to be disabled is, in the minds of many, to be incapable and incompetent, dependent on others, and even morally questionable. Thus, for much of American history, the perception of an individual as disabled has been inconsistent with the personal qualities that the voting public and political gatekeepers view as desirable for public officials.
While there have always been politicians with disabilities in government, many of them have chosen to hide or minimize the visibility and extent of their impairments. However, cultural changes in part provoked by the disability rights movement have meant that many impairments have become less discrediting, and that people with disabilities are more likely to be seen as having the potential to be contributing citizens. The number of political candidates and officeholders with disabilities appears to be increasing, and some have chosen to include or even highlight their disabling condition as they present themselves to their constituents.
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Autism Spectrum Disorders in Later Life
Ye In (Jane) Hwang, Kitty-Rose Foley, Samuel Arnold, and Julian Trollor
Autism spectrum disorder (ASD), or autism, is a neurodevelopmental disorder that is typically recognized and diagnosed in childhood. There is no established biological marker for autism; rather, the diagnosis is made based on observation of behavioral traits, including (a) persistent deficits in social interaction and communication, and (b) restricted, repetitive patterns of behavior, interests, or activities. Because autism is a spectrum disorder, autistic individuals are a highly heterogeneous group and differ widely in the presentation and severity of their symptoms. The established prevalence of ASD is approximately 1% of the population.
Information about autism in adulthood is limited; most of the literature examines childhood and adolescence. While the term “later life” has traditionally been associated with those over the age of 65, a dire lack of understanding exists for those on the autism spectrum beyond early adulthood.
Individuals remain on the spectrum into later life, though some mild improvements in symptoms are observed over time. Autistic adults experience high levels of physical and mental health comorbidities. Rates of participation in employment and education are also lower than that of the general population. Quality of life is reportedly poorer for autistic adults than for nonautistic peers, though this is not affected by age. More robust studies of the health, well-being, and needs of autistic adults are needed, especially qualitative investigations of adulthood and aging and longitudinal studies of development over the lifespan.
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Best Practices for Working with Students with Physical Disabilities
April B. Coughlin
The Disability Studies in Education framework offers the best practices for working with, listening to, and addressing the strengths and needs of students with physical disabilities in schools. Areas covered include reducing barriers to physical and social access, utilizing expertise of students with disabilities to inform practice, reducing stigma while creating disability culture in the classroom, and assisting students with physical disabilities in building self-advocacy skills.
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Disability Studies in Education and Inclusive Education
Susan Baglieri and Jessica Bacon
Disability studies (DS) is a transdisciplinary field of scholarly inquiry whose members seek to understand disability and disablement as cultural phenomena. Scholars who adopt disability studies in education (DSE) perspectives aim to understand how disability is conceptually configured in the research and practice that shape learning, education, and schooling. The DSE field strives to discern and theorize medical and social models of disability in order to promote critical examination of the cultural conditions in which educational practices are performed. The commitments and understandings that arise within DSE lead proponents to conceptualize inclusive education reform as a radical project, and call for the development of policy, teaching, and teacher education practices that acknowledge and resist ableism.
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Qualitative Research Methods and Students With Severe Disabilities
Karen A. Erickson and David A. Koppenhaver
Qualitative research methods, in many forms, have been used to deepen understandings in the field of severe disabilities for decades. Using methods such as individual case studies, grounded theory, phenomenology, content analysis, life history, and ethnography, qualitative research has served to explain bounded systems, generate theory, study the lived experiences of individuals, investigate historical and contemporary texts and contexts, share first-person narratives, and investigate cultural and social systems that involve students with severe disabilities. Indicators of quality in qualitative methods and means of establishing credibility have been explicated and are widely applied in the field. To varying degrees, qualitative methods have allowed researchers to represent the voices of students with severe disabilities and engage them actively in the research process, which is important given that a mantra among persons with severe disabilities and their advocates is nothing about us without us.
Regardless of the methods, accurately representing the voices of students with severe disabilities and including them as active participants in research is not always easy to accomplish given the nature of their cognitive and communication profiles. Many students with severe disabilities do not communicate symbolically through speech, sign language, or graphic symbols. Others have limited means of communication and are dependent on familiar communication partners to co-construct meaning with them. Some approaches to qualitative research, such as post-critical ethnography, provide a potential path toward representing the voice of a broader range of students with severe disabilities because these methods lead researchers to interrogate assumptions in the field while examining their own positions, perceptions, and beliefs relative to the subject of the investigation. While these methods offer opportunity with respect to their ability to fairly represent and involve students with severe disabilities, they challenge previously accepted indicators of quality and means of establishing credibility in qualitative research. As qualitative research methods are applied in understanding students with severe disabilities in the future, these challenges will have to be addressed.
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Disability Theory in Context
Jasmine P. Brown and Yolanda Suarez-Balcazar
The condition of disability and disabled persons in society has shifted and transformed throughout time and history with the rise of medical interventions, capitalism, and disability advocacy. This article discusses the different theories and models that have dominated the study of disability and further explains the contributions of disability theory on disability identity, as well as the intersection of disability and race. Also, with the rise of the social model ideals, there has been an increase in advocacy and empowerment within the disability community. This article concludes with an overview of advocacy and empowerment interventions for and with individuals with disabilities and recommendations for future research in sociology.
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Disability: Neurocognitive Disabilities
Lisa S. Patchner and Kevin L. DeWeaver
The multiplicity of disability definitions can be attributed to the heterogeneity of disability, its multifactoral nature, and its effects across the life span. Of particular concern to the social work profession are those persons with neurocognitive disabilities. Neurocognitive disabilities are ones where a problem with the brain or neural pathways causes a condition (or conditions) that impairs learning or mental/physical functioning or both. Some examples are intellectual disabilities, autism spectrum disorders, and savant syndrome. Neurocognitive disabilities are the most difficult to diagnose often times because of their invisibility. Providing services for people with neurocognitive disabilities is very difficult, and people with these disabilities are among the most vulnerable populations in today's society. This entry discusses neurocognitive disabilities and current and future trends in social work disability practice.
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Dis/Ability and Critical Cultural Studies
Diane R. Wiener
While there are many contestations surrounding the significance, meanings, and interpretations of dis/ability in the field of critical cultural studies, the author presents a variety of foundational as well as emergent concepts, structures, and histories in order to situate these debates. The 30th anniversary of the Americans with Disabilities Act in 2020, increasingly frequent criticisms of the “sea of whiteness” in disability critique, and an attendant call for equitable attention to intersectional theorization and practice, accompanied by a variety of frameworks, are employed to introduce the relevance of these contestations as well as to equip readers with opportunities to engage and study further.
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Comorbidity
Diana M. DiNitto
This entry defines comorbidity and similar terms used in various fields of practice. It addresses the prevalence of comorbidity, suggests explanations for comorbidity, and discusses integrated treatment for comorbid conditions and the importance of the concept of comorbidity in social work practice.
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Evidence-Based Practices for Teaching Learners with Multiple Disabilities
Vera Munde and Peter Zentel
Designing education for learners with profound intellectual and multiple disabilities (PIMD) is a special challenge for both professionals and researchers. Learners with PIMD experience a combination of significant intellectual and other disabilities, such as motor and sensory impairments. Heterogeneity in terms of combination and severity of disabilities is a common characteristic of this group. In the past, learners in this target group were described as not being able to learn due to the complexity of their disabilities. Recent studies do provide evidence that learners with PIMD are in fact able to learn, however, evidence-based practice for designing education for this group of learners is still scarce. One reason could be the difficulties associated with conducting intervention studies such as randomized controlled trials or controlled clinical trials with this target group. Most studies are designed as single-case studies. Hence, only a small number of studies have investigated topics such as communication, assessment, and teaching curricula to generate knowledge about the education of these learners. The most important conclusion of these studies is that all teaching activities need to be designed according to the strengths and needs of each individual learner with PIMD.
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Disability Inclusion in Sexual and Reproductive Health in the United States
Linda Long-Bellil
Despite the passage of the Americans with Disabilities Act (ADA) more than 30 years ago, people with disabilities experience significant barriers to exercising their right to sexual and reproductive health throughout their life course. The historical segregation and stigmatization of disabled individuals has created the conditions in which members of this population experience persistent disparities in the prevalence of adverse health conditions and inadequate attention to care, along with disparities in preventive care, health promotion, and access to health care services. These disparities manifest in social services and health care generally and also in the sphere of sexual and reproductive health.
Among many direct care workers, health care providers, and family members, assumptions persist that individuals with disabilities are asexual, unable to exercise informed consent to sexual activity, and unable to carry a pregnancy to term or to parent successfully. These assumptions adversely affect the ability of individuals with disabilities to access basic information about their sexual health and function in order to make informed decisions about their sexual activity, and also impact their access to preventive health screening, contraception, and perinatal care. Inadequate transportation and physically inaccessible environments and equipment such as examination tables pose additional barriers for some disabled individuals. A lack of training in disability-competent care among health care professionals is a pervasive problem and presents yet another challenge to obtaining appropriate and necessary information and care. Despite these barriers, the research shows that more and more women with disabilities are having children, and there is an increasing recognition that people with disabilities have a right to sexual expression and appropriate sexual and reproductive health care , accompanied by a gradual evolution among social services and health care providers to provide the necessary information and support.